Responses to parliamentary questions
Question from Deputy Robert O’Donoghue - PQ 35903-26
Deputy O'Donoghue asked if compassionate access has been considered for prescribing supports in cases involving ultra-rare conditions. Read the HSE response.
From: Communications and public affairs
Published: May 2026
Updated: June 2026
Documents
Question from Deputy Robert O’Donoghue - PQ 35903-26
PDF, 205KB, 1 pages
Summary
To ask the Minister for Health whether the HSE has considered the use of compassionate access, exceptional reimbursement mechanisms, or off-label prescribing supports in cases involving ultra-rare conditions such as Juvenile Batten Disease; and if she will make a statement on the matter.
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