Responses to parliamentary questions
Question from Deputy Réada Cronin - PQ 48346-26
Deputy Cronin asked about progress in implementing the National Rare Disease Pathway for Paediatric Neurofibromatosis Type 1. Read the HSE response.
From: Communications and Public Affairs
Published: June 2026
Updated: September 2026
Documents
Summary
To ask the Minister for Health the progress that has been made in implementing the HSE-recognised National Rare Disease Care Pathway for Paediatric Neurofibromatosis Type 1 (NF1); the resources that have been allocated to support its delivery nationally; and if she will make a statement on the matter.
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