Responses to parliamentary questions
Question from Deputy Mark Ward - PQ 23049-26
Deputy Ward asked about access to givinostat for children with Duchenne muscular dystrophy. Read the HSE response.
From: Communications and public affairs
Published: March 2026
Updated: April 2026
Documents
Question from Deputy Mark Ward - PQ 23049-26
PDF, 607KB, 3 pages
Summary
To ask the Minister for Health will consider running a pilot orphan drug early-access programme in order that children with Duchenne muscular dystrophy can access givinostat; if a pricing and reimbursement application has been received by the HSE for givinostat; and if she will make a statement on the matter.
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