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Responses to parliamentary questions

Question from Deputy Ken O'Flynn - PQ 33754-26

Deputy O'Flynn asked if the HSE maintains a national register of patients diagnosed with rare neurological condition. Read the HSE response.

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Summary

To ask the Minister for Health whether her Department or the HSE maintains a national register or consolidated dataset of patients diagnosed with rare neurological conditions, including Friedreich’s ataxia; and if not, whether any plans are in place to establish such a dataset for service planning purposes.

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