Responses to parliamentary questions
Question from Deputy Ken O'Flynn - PQ 33754-26
Deputy O'Flynn asked if the HSE maintains a national register of patients diagnosed with rare neurological condition. Read the HSE response.
From: Communications and public affairs
Published: May 2026
Updated: July 2026
Documents
Question from Deputy Ken O'Flynn - PQ 33754-26
PDF, 229KB, 2 pages
Summary
To ask the Minister for Health whether her Department or the HSE maintains a national register or consolidated dataset of patients diagnosed with rare neurological conditions, including Friedreich’s ataxia; and if not, whether any plans are in place to establish such a dataset for service planning purposes.
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