Responses to parliamentary questions
Question from Deputy George Lawlor - PQ 45294-26
Deputy Lawlor asked about making belzutafan available to patients with the genetic condition Von Hippel Lindau (VHL). Read the HSE response.
From: Communications and Public Affairs
Published: June 2026
Updated: July 2026
Documents
Summary
To ask the Minister for Health if she will intervene to ensure that the belzutafan which was approved by the European Medicines Agency in December 2024 for treatment of the genetic condition Von Hippel Lindau (VHL) is made available to patients in this country; the number of persons with this condition who could benefit from this new treatment; and if she will make a statement on the matter.
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