Responses to parliamentary questions
Question from Deputy Erin McGreehan - PQ 20491 26
Deputy McGreehan asked whether the HSE has considered establishing an Early Access Programme for skyclarys. Read the HSE response.
From: Communications and public affairs
Published: March 2026
Updated: April 2026
Documents
Question from Deputy Erin McGreehan - PQ 20491 26
PDF, 649KB, 3 pages
Summary
To ask the Minister for Health whether her Department or the HSE has considered establishing an Early Access Programme for skyclarys, in light of the progressive and time sensitive nature of Friedreich's Ataxia, so that patients can access the treatment while reimbursement negotiations are ongoing.
This is a beta version - your feedback will help us to improve it