Responses to parliamentary questions
Question from Deputy Albert Dolan - PQ 48540-26
Deputy Doland asked about the reimbursement of skyclarys. Read the HSE response.
From: Communications and public affairs
Published: June 2026
Updated: July 2026
Documents
Summary
To ask the Minister for Health the reason skyclarys has not been included on the agenda for the recent HSE Drugs Group meeting held in June 2026; when the drug will be considered by the Drugs Group; the timeline for a decision on its prioritisation within the reimbursement process; and the measures being taken to ensure there are no further avoidable delays in progressing access to skyclarys for patients living with Friedreich’s ataxia; and if she will make a statement on the matter.
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