Patient Public Partnership Advisory Group (PPPAG)

The launch of the Patient Public Partnership Advisory Group (PPPAG) on 2 September 2026 marked an important step in strengthening patient and public involvement in decision-making. The event celebrated how far the group has come while marking a confident step into its next phase. The open, constructive atmosphere reflected the months of listening and co- design that shaped the PPPAG, creating a welcoming and safe space where people felt able to speak honestly, challenge ideas and know their contributions would be respected. From the outset, patients and the public were clear about what genuine partnership requires: early involvement, plain English, accessible participation and visible evidence of what changed as a result.

Speakers explored how lived experience, co-design and shared responsibility can lead to better, more inclusive digital services. Dee Power of Context Studio shared learning from the HSE Health App approach, while a fireside chat brought together Eamon McPartlin, Gisela Florido, Kevin Kelly and Kevin Horan. Denis Meade also set out the essential ingredients of successful partnership: common purpose, collaboration, structure, shared responsibility and respect.

The day’s discussions were notable for their honesty and transparency. Participants recognised that genuine partnership does not mean agreeing on everything. It means listening carefully, explaining decisions openly and closing the feedback loop so people can see how their time, experience and advice have influenced the work.

The afternoon member meeting converted that energy into action. Members agreed the group’s terms of reference and ways of working, considered how the PPPAG connects with Digital for Care governance, and agreed its initial priorities through the end of 2026. These decisions provide a strong foundation for a group that will advise on accessibility, usability, privacy, digital literacy, equity, inclusion and people’s overall experience of health services.

The strongest message from the day was one of hope, grounded in practical commitment. The launch was not the end of a development process, but the beginning of a genuine partnership. Its success will not be measured simply in meetings held or documents produced, but in what changes when patient and public voices are heard, valued and translated into action.